It is very important that children recently diagnosed with diabetes have access to as many resources and tools as possible, so that they can become familiar with the disease and help them assimilate their new situation.
As this is a child audience, it is necessary to describe the process in a simple way and in language that they can understand. It is important to treat diabetes in a natural way without causing them any alarm or approaching it from a negative point of view.
The attitude of the parents is fundamental; the way in which the parents understand and approach the new situation will determine the degree of acceptance of the child in the face of the disease and their collaboration in the treatment.
The International Society for Pediatric and Adolescent Diabetes (ISPAD) has established guidelines for diabetes treatment that cover the knowledge, skills and attitudes that people with type 1 diabetes should know and manage in order to integrate treatment into their daily lives.
ISPAD establishes two levels of education: the first involves acquiring basic knowledge of the treatment of DM1 and is taught at the beginning of diagnosis, and the second level is taught on an ongoing basis.
On the other hand, the American Diabetes Association (ADA), which is one of the most important scientific societies related to diabetes, recommends that in the age group of 1 to 12 years, education be directed at parents and caregivers, while from 12 years of age, considering the emotional and cognitive development of the child, education should be directed primarily towards the patient, with parents included.
Child's responsibility in diabetes control according to their age
- 2-4 years: Children collaborate and participate in activities directed by their parents. The objective is for them to learn to live with diabetes as just another activity in their lives. Education is directed towards all those activities aimed at the participation of self-control in the child, ensuring good development with a healthy and balanced nutritional intake.
- 4-6 years: They ask why, recognizing that they are different from others. The goal is to make them understand why they inject insulin differently from other children, in order to get them to participate in self-control. Education is aimed at assimilating basic concepts of diabetes, through the metaphor of the story. The goal is to integrate all food groups into the diet.
- 6-8 years: Children learn to read and write and to know the time, so the goal is for them to be able to self-monitor, learn to differentiate between high and low blood sugar levels and participate in insulin injections. They must learn to differentiate between food groups, ensure that they eat in a healthy way, and recognize the symptoms of hypoglycemia and take urgent action. Education is focused on differentiating between normal, high and low blood sugar levels and must be motivational and provide knowledge through play.
- 8-12 years: At this age, children's sense of responsibility increases and they know how to interpret and differentiate between good and bad behaviour, as well as understanding the consequences of their actions. The aim of education is to gradually increase their autonomy in controlling diabetes (getting them to inject insulin, achieving good results in treating hypoglycaemia, etc.). Basic knowledge of sports performance is provided, menus are prepared using the different food groups and the participation of their friends is encouraged.
- 12-16 years: Their sense of responsibility increases and independence and autonomy are progressing, so that they understand the consequences of their actions. They must acquire responsibility in the treatment and control of diabetes without supervision, identify with their group of friends with their diabetes, have autonomy in decision-making in modifying their treatment and know how to act in special situations. Education provides knowledge of action and risks in special situations (alcohol, tobacco, sexuality, etc.).
- 16-18 years: Increasing independence and autonomy, coinciding with the transition to adulthood. They gain autonomy in diabetes control and their responsibilities increase, and their acquired knowledge is assessed for transfer to an adult hospital. Good integration should be achieved with good control of their diabetes in adulthood, reinforcing their knowledge and skills, promoting the need for good control to avoid long-term complications.
From the age of 12, we could say that they are already fully immersed in new technologies, so the use of a health application, specifically for diabetes such as the CONTOUR® DIABETES app, can help them better interpret their blood glucose values and, therefore, make better decisions in diabetes self-management.
Source: How should a child with diabetes take responsibility for their treatment? By Ana M. Gómez Rodríguez, Nurse at the Hospital Sant Joan de Déu, Barcelona